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The Separating Sickness - Ma'i Ho'oka'awale: Interviews with Exiled Leprosy Patients at Kalaupapa, Hawaii

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The Separating Sickness - Ma'i Ho'oka'awale: Interviews with Exiled Leprosy Patients at Kalaupapa, Hawaii

4.85 60,898 ratings · 9,631 reviews
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Overview: Oral history -- interviews with exiled Leprosy Patients at Kalaupapa, Molokai, Hawaii. Patients tell about having bounties placed on them, being captured, quarantined and imprisoned for life as leprosy patients. Published by Anoai Press. 16 pages of color pictures. Thousands of persons with leprosy were sent to die at Kalaupapa, Molokai. Kalaupapa operated as a leprosarium (actually a prison) for 103 years, from 1886 to 1969. It is the place where the Catholic Priest Father Damien came to serve the patients. He resided at Kalaupapa from 1873 to 1889. In 1889 he also succumbed to the disease. Very old patients still reside at Kalaupapa. Today, Kalaupapa has been preserved as a U.S. National Park, because of its natural beauty, and to document the tragic events that took place there. The book "The Separating Sickness" is an oral history. It was researched and published for the first time in the mid-1970s. In the pages of the book, old patients document their lives for future generations to read about. Most of those interviewed, have passed away. Nevertheless, they share their haunting experiences with us and ask us why society treated them in such a brutal and inhumane way? -- Their lives remind us that Hawaii's history is not all bright and sunny. "You know, the babies that were born inside here were not allowed to stay with their parents. After the babies were born, the law said they had to be taken away to the baby nursery in Kalaupapa. They were afraid of the contact - afraid the babies would catch the disease from their parents ... they allowed the children to live one year inside Kalaupapa nursery. There we could see them only through thick glass, but no can touch! Then, after one year, they were removed. They were either "hanai "by family members or 'issued' out for adoption by the Board of Health ..." There's a whole lifetime of pain in these simple words, spoken by a "Male: Hawaiian, Widowed, Age: 81, 67 years at Kalaupapa" in a series of oral histories collected in Kalaupapa in the 1970s. These interviews were collected by sociologists Ted Gugelyk and Milton Bloombaum and published as "The Separating Sickness: Ma'i Ho'oka'awale" in 1979. The book was recently republished by Anoai Press and is once again available at Hawaii bookstores. and as an EBook. "That book give great insights into what it was like at Kalaupapa from the inside; the first book, really, to talk about Hansen's disease from the patient's point of view," said Stephanie Castillo, creator of "Simple Courage," an Emmy-award-winning documentary on the subject. "There are some truly amazing stories in there..." -- Burl Burlingame, Honolulu Star-Bulletin, 1/6/97 Author Bio: Ted Gugelyk is retired from the University of Hawaii and The East West Center, in Honolulu Hawaii. He has published both academic work and fiction, and after fifty five years of living in Hawaii now resides in North East rural Thailand. He writes, travels and publishes books, Anoai Press is his small press, and produces stories about surfing, Hawaii and Asia and the Pacific. Milton Bloombaum is a retired Senior Professor of Sociology, at the University of Hawaii. He now resides in Ashland, Oregon. keywords: Leprosy, Hawaii, Kalaupapa-Molokai, Father Damien, Stigma, Oral History, Hawaiians.

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Book details & editions

ISBN
17434077
Publisher
First Edition Design Publishing
Publication date
February 18, 2013
Pages
109 pages
Reading Options
PDF · EPUB · Mobi
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Ted Gugelyk writes contemporary fiction and has always been fascinated by character-driven stories. They hold a degree in English Literature and previously worked as an editor before transitioning to writing their own books. Ted Gugelyk lives with their spouse and a very vocal rescue cat.

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Patricia Diaz
Patricia Diaz May 23, 2025
Not entirely to my refined tastes. It verged on repetitive in the second act. A more concise edit would have served it well. Perhaps more aligned with a different audience's tastes.
John Lewis
John Lewis April 13, 2024
Such a rich narrative. It strikes a perfect harmony of dialogue and world-building. Every chapter felt necessary. An effortless 5 stars.
Emily Taylor
Emily Taylor April 05, 2024
Took a moment to build, but the payoff was spectacular. It held my rapt attention, even when certain twists were telegraphed. A very distinguished novel.
Dorothy Flores
Dorothy Flores June 29, 2024
Such a rich narrative. I adored how the story unfolded. It kept me captivated without sacrificing elegance. Worth every moment spent reading.
Christopher Moore
Christopher Moore July 04, 2024
Not entirely to my refined tastes. Certain acts were fascinating, while others felt like a slight endeavor to complete. Suitable if your reading queue is empty.
Nancy Williams
Nancy Williams October 15, 2025
A profoundly satisfying read. The prose is exquisite. It’s accessible yet undeniably sophisticated. I am now a lifelong fan of this author.
Charles Thompson
Charles Thompson February 09, 2025
Absolutely brilliant. I became deeply invested in the protagonist's journey. A masterclass in storytelling. An effortless 5 stars.
Robert Jackson
Robert Jackson October 21, 2025
Masterpiece from start to finish. The pacing was impeccable and the characters felt incredibly authentic. I was completely immersed. An effortless 5 stars.
Barbara Adams
Barbara Adams May 12, 2024
Such a rich narrative. I became deeply invested in the protagonist's journey. A masterclass in storytelling. Worth every moment spent reading.
Cynthia Martinez
Cynthia Martinez April 22, 2024
Honestly one of the most premium reading experiences lately. I became deeply invested in the protagonist's journey. A masterclass in storytelling. A true literary gem.
Mark Hill
Mark Hill October 24, 2024
A highly sophisticated read. It held my rapt attention, even when certain twists were telegraphed. A very distinguished novel.
Mark Roberts
Mark Roberts February 07, 2025
I was completely blown away. It strikes a perfect harmony of dialogue and world-building. Every chapter felt necessary. I am now a lifelong fan of this author.